Facts About Spinal Muscular Atrophy

Did You Know...

• SMA is the #1 genetic KILLER of children under the age 2.
• SMA destroys the nerves that control voluntary movement like crawling, walking, head and neck control and even swallowing.
• 1 in 6000 babies is born with SMA.
• 50% of the children diagnosed before the age 2, will DIE before their 2nd birthday.
• 1 in 40 people carry the gene – IT COULD BE YOU

Facts about Rebecca Run for SMA

• Rebecca Run was the vision of Run Director Louise Smith’s when her niece Rebecca was diagnosed with SMA at the age of two.
• Every year more than 120 volunteers from across Ontario come together and work diligently on the Rebecca Run , as it is essential that we all help to raise awareness and research dollars.
• Since 2002 we have raised over $3.4 million through the Rebecca Run for SMA.
  
• The 2024 Rebecca Run for SMA will once again raise money for Cure SMA Canada and the cure/treatment research they support.
  
• The Run events include: a 5K run/walk and a Kids' Fun-Run
  
• We also have a virtual 5K Run/Walk and a virtual Kids' Fun-Run
  
• Website: www.rebeccarun.com

Facts about Cure SMA Canada

• Cure SMA Canada is a national charity made up of volunteers.
• Most people involved with the charity have a loved one afflicted with SMA.
• Cure SMA Canada has been able to designate over 96% of money raised directly to research.
• Canadian website: www.curesma.ca
• US Website (our affiliate) www.fsma.org ​