About SMA

Did you know…

• SMA is the #1 genetic KILLER of children under the age 2.
• SMA destroys the nerves that control voluntary movement like crawling, walking, head and neck control and even swallowing.
• 1 in 6000 babies is born with SMA.
• 50% of the children diagnosed before the age 2, will DIE before their 2nd birthday.
• 1 in 40 people carry the gene – IT COULD BE YOU!

Facts about Rebecca Run for SMA:

• Rebecca Run was the vision of Race Director Louise Smith’s when her niece Rebecca was diagnosed with SMA 11 years ago.
• Every year more than 120 volunteers from across Ontario come together and work diligently on the Rebecca Run, as it is essential that we all help to raise awareness and research dollars.
• Since 2002 we have raised over 2 million dollars through the Rebecca Run for SMA and the Angel Gala for SMA (www.angelgala.com).
• 2012 ESSO Rebecca Run for SMA will once again raise money for FSMAC and the cure/treatment research they support.
• The event includes: 5k run/walk, 3km walk/run/roll, 1km kid’s fun-run, post run BBQ, great race kits, door prizes, face painting and lots more for the entire family to enjoy.
• Website: www.rebeccarun.com

Facts about Families of Spinal Muscular Atrophy Canada (FSMAC):

• FSMAC is a national charity made up of volunteers.
• Most people involved with the charity have a loved one afflicted with SMA.
• FSMAC has been able to designate over 96% of money raised directly to research.
• Canadian website, www.curesma.ca
• US Website (our affiliate) www.fsma.org