Facts About Spinal Muscular Atrophy

Did You Know...
  • SMA is the #1 genetic KILLER of children under the age 2.
  • SMA destroys the nerves that control voluntary movement like crawling, walking, head and neck control and even swallowing.
  • 1 in 6000 babies is born with SMA.
  • 50% of the children diagnosed before the age 2, will DIE before their 2nd birthday.
  • 1 in 40 people carry the gene – IT COULD BE YOU

Facts about Rebecca Run for SMA
  • Rebecca Run was the vision of Run Director Louise Smith’s when her niece Rebecca was diagnosed with SMA at the age of two.
  • Every year more than 120 volunteers from across Ontario come together and work diligently on the Rebecca Run , as it is essential that we all help to raise awareness and research dollars.
  • Since 2002 we have raised over $2.6 million through the Rebecca Run for SMA and the Angel Gala for SMA (www.angelgala.com).
  • 2017 Rebecca Run for SMA will once again raise money for FSMAC and the cure/treatment research they support.
  • The event includes: 5k run/walk, 3km run/walk/roll, 1k kid’s fun-run, post-run BBQ, and lots more for the entire family to enjoy.
  • Website: www.rebeccarun.com

Facts about Families of SMA Canada
  • FSMAC is a national charity made up of volunteers.
  • Most people involved with the charity have a loved one afflicted with SMA.
  • FSMAC has been able to designate over 96% of money raised directly to research.
  • Canadian website: www.curesma.ca
  • US Website (our affiliate) www.fsma.org ​